Steph and Dom: 'Our son could die at any minute'

Steph and Dom

Saturday, January 26, 2019

Presenters Steph and Dom have revealed their son's epilepsy could kill him at any moment, sparking their decision to take part in a new documentary about medicinal cannabis.

Psychotherapist Lucy Beresford interviewed Dom about the documentary on his weekend talkRADIO show, and he spoke of the "sense of urgency" the couple felt in finding an alternative drug for 18-year-old Max.

"What really prompted us to do something was SUDEP, which is sudden unexpected death in epilepsy. They don't really understand it, but they think it's something to do with the brain having a seizure and so does the heart, and it's instant death," Dom explained.

 

 

"Max at 18, he's right in snipe rally for this. He could have died two minutes ago, he could die this afternoon, he could die tomorrow morinig. There is a sense of urgency.

"If we can reduce the seizures, then there's less chance of him having the seizure that would kill him."

Max suffers with severe epilepsy, and also has a diagnosis of autism. According to Steph and Dom, the last time they were able to have a conversation with him was when he was four years old.

 

'Drugs destroy the brain'

"These drugs are such bad news, they destroy the brain," Dom said, referring to Max's current treatment.

"We felt that it would be wrong not to [do the documentary] and that if anything good could come out of Max's suffering that might move on this issue about getting medical marijuana acceptable and accessible in this country, then Max's suffering would not have been in vain.

"If he can save one life by moving it on a pace than it will have been worthwhile."

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